Description:

The Master of Arts in Medical Humanities & Bioethics Program

Presents

A Montgomery Lecture

Synthesizing Supported Decision-Making, Supported Engagement
and Greater Autonomy for Autistic and Neurodivergent Individuals

Speakers:

Nanette Elster, JD, MPH 
Professor of Bioethics, Neiswanger Institute for Bioethics
Loyola University Chicago Stritch School of Medicine

Kayhan Parsi, JD, PhD, HEC-C 
Professor of Bioethics, Neiswanger Institute for Bioethics
Loyola University Chicago Stritch School of Medicine

Devon Price, PhD 
Clinical Associate Professor
School of Continuing and Professional Studies
Loyola University Chicago

This panel presentation focuses on the concept of supported engagement which builds on the recent trend away from guardianship or conservatorship to the more flexible approach of supported decision-making. Over half of the states now have legislation that allows individuals with intellectual disability to seek the support of a trusted friend or relative to help make healthcare decisions while still retaining full decision-making authority. The concept of supported engagement builds on this concept by acknowledging that autistic and neurodivergent individuals need not only support in the form of trusted individuals but also coordinated and individualized resources in order to have a flourishing life. The presentation will also challenge the "pathological demand avoidance" profile of autism: the argument being that this, in fact, is a persistent drive toward autonomy and respect for individual dignity. This suggests that one of the major ways institutions fail autistic patients and students is by ignoring the autistic person’s own personal goals, desires, and feelings. The numerous struggles other disabled communities face in uplifting autonomy (even within theoretically friendly spaces) will also be considered. A synthesis will be drawn between the philosophy of supported decision-making and the need for greater autonomy for disabled persons.

This lecture is open to the public and will be held in the Searle Seminar Room in the Lurie Research Building (303 E Superior), Chicago Campus. For those outside the Chicago area and anyone who would prefer to attend remotely, a Zoom option is also available.

**REGISTRATION IS REQUIRED FOR ZOOM ATTENDANCE ONLY**
REGISTER HERE

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