Description:

The Master of Arts in Medical Humanities & Bioethics

Presents

A Montgomery Lecture

With

Joel Frader, MD, MA
Professor of Pediatrics and Professor of Bioethics and Medical Humanities
Feinberg School of Medicine
Pediatric Palliative Care Physician at Ann & Robert H. Lurie Children's Hospital of Chicago

Doing Good?

A few international PHARMA-sponsored “charitable access programs” provide free treatment for rare diseases for patients in the developing world.  Generally speaking, this treatment costs hundreds of thousands of dollars per patient per year in the industrialized world.  As the (volunteer) ethicist for the largest of these programs (over 225 current patients receiving treatment around the globe), I struggle with moral justifications for what we are doing.  This session will describe the program and the associated ethical issues.