Description:

The Master of Arts in Medical Humanities & Bioethics

Presents

A Montgomery Lecture

With

Sandy Sufian, PhD, MPH
Associate Professor of Health Humanities and History in the 
Department of Medical Education at UIC School of Medicine
Associate Professor of Disability Studies in the Department of Disability and Human Development at UIC

Virtual Patient Engagement:
Lessons from the Cystic Fibrosis Community

This talk reviews one experience in building an effective virtual patient engagement project, a method that has become increasingly in demand in patient-centered outcomes research due to COVID-19.  In the past four years, the work of the Cystic Fibrosis Reproductive and Sexual Health Collaborative (CFReSHC) has resulted in robust patient drive research generation and a resource tool designed to help facilitate providers and patient communication in chronic care adult clinics about issues relating to sexual and reproductive health. The talk will review some of the components of the established model, the challenges of virtual patient engagement, and CFReSHC’s current work on developing its model further for other disease communities. The presentation will help us think about how to create mechanisms to enable impactful and meaningful patient centered outcomes research.

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